{"id":3983,"date":"2023-09-11T11:04:12","date_gmt":"2023-09-11T16:04:12","guid":{"rendered":"https:\/\/fifarma.org\/?p=3983"},"modified":"2024-05-17T12:16:36","modified_gmt":"2024-05-17T17:16:36","slug":"el-arte-preguntar","status":"publish","type":"post","link":"https:\/\/fifarma.org\/en\/el-arte-preguntar\/","title":{"rendered":"El arte de preguntar"},"content":{"rendered":"

Por Liliana Parra Santamar\u00eda*
*La autora es MA en comunicaci\u00f3n estrat\u00e9gica de Johns Hopkins University, directora de\nla agencia de comunicaciones y dise\u00f1o FLUYT, y consultora en gesti\u00f3n de conocimiento\nde FIFARMA.<\/p>\n\n\n\n

<\/div>\n\n\n\n

En el cap\u00edtulo 63 del libro del Tao Te King (el camino), Lao Tse, nos ofrece una reflexi\u00f3n universal para abordar cualquier tarea colosal. En su estilo caracter\u00edstico, la simpleza parece disfrazar el verso de juego de palabras, casi una obviedad. As\u00ed aconseja el sabio chino:<\/p>\n\n\n\n

Acomete la dificultad por su lado m\u00e1s f\u00e1cil. Ejecuta lo grande comenzando por lo m\u00e1s peque\u00f1o. Las cosas m\u00e1s dif\u00edciles se hacen siempre abord\u00e1ndolas en lo que es m\u00e1s f\u00e1cil, y las cosas grandes en lo que es m\u00e1s peque\u00f1o.<\/em> <\/p>\n\n\n\n

El poder de esta reflexi\u00f3n se abre solo para aquellos en capacidad de poner de lado sus presunciones, apartarse de las certezas y, por qu\u00e9 no, hasta de sus egos, para volver a preguntar con la curiosidad de un ni\u00f1o. Esta es una aproximaci\u00f3n muy constructiva cuando se trata de comprender el desaf\u00edo y potencial de los datos en el sector salud.<\/p>\n\n\n\n

Sabemos que el mundo produce datos de manera exponencial y que recogemos m\u00e1s datos de los que podemos almacenar, procesar o analizar, tanto m\u00e1s ahora en los tiempos de la inteligencia artificial. Pero poco se dice que el sector salud es uno de los m\u00e1s grandes generadores de datos con el potencial de transformar la sociedad.<\/p>\n\n\n\n

De acuerdo con la Comisi\u00f3n Europea, casi un tercio de los datos del mundo son producidos por los sistemas de salud 1 . Esto es una promesa para el futuro de la investigaci\u00f3n cl\u00ednica, el desarrollo de nuevas terapias y la innovaci\u00f3n en los servicios de salud. Grandes proyectos como el Espacio Europeo de Datos Sanitarios (EHDS)<\/a>, enmarcado en la Estrategia Europea de Datos<\/a>, conectar\u00e1 los sistemas de salud nacionales, en vastas autopistas de informaci\u00f3n, con un enfoque en datos abiertos que puede cambiar radicalmente la forma como operan los sistemas en el Viejo Continente.<\/p>\n\n\n\n

Sin embargo, la magnitud del esfuerzo necesario para producir, almacenar, analizar, utilizar y muy importantemente, para gobernar y proteger dichos datos, nos devuelve a la reflexi\u00f3n de Lao Tse sobre la forma de iniciar una tarea colosal: abordar la complejidad desde lo que la simplifica. Y para ello, necesitamos dominar el arte de preguntar.<\/p>\n\n\n\n

El arte de preguntarle a los datos para que estos puedan hablar, nos conduce a pensar primero en asuntos esenciales como \u00bfcu\u00e1l es el problema que queremos resolver?, \u00bfcu\u00e1l es nuestro rol en la soluci\u00f3n a este problema? \u00bfc\u00f3mo podemos aprovechar los datos para contribuir a esta soluci\u00f3n? \u00bfc\u00f3mo vamos a proteger y gobernar los datos obtenidos? Todas estas preguntas deben estar consideradas, sino resueltas con la mayor claridad, a\u00fan antes de empezar a dise\u00f1ar los instrumentos para recolectar o utilizar datos a escala. Cuando no es as\u00ed, los problemas de gesti\u00f3n y falta de foco no tardar\u00e1n en llegar.
<\/p>\n\n\n\n

La estrategia de gesti\u00f3n de conocimiento de FIFARMA busca, entre otros objetivos, hacer de la Federaci\u00f3n un referente en materia de generaci\u00f3n de contenido e informaci\u00f3n p\u00fablica sobre el sector salud. Nos hemos planteado una visi\u00f3n donde este contenido no sea una capa m\u00e1s del maremagnum de datos, sino priorizar la producci\u00f3n que efectivamente pueda cerrar brechas de conocimiento en la industria y ampliar el potencial de aprendizaje en nuestro ecosistema.<\/p>\n\n\n\n

Practicar el arte de preguntar debe ser entonces una pr\u00e1ctica habitual y constituirse en un
paradigma para el Observatorio Regional de FIFARMA. As\u00ed, empezamos por hacer
expl\u00edcitas esas preguntas fundacionales con intencionalidad y nos apartamos de la
tentadora y siempre desatinada pr\u00e1ctica abordar el asunto de los datos desde el resultado
esperado o el instrumento a utilizar.<\/p>\n\n\n\n

<\/p>\n\n

\n\n\t\t\n
    \n\t\t\t <\/ul>\n <\/div>","protected":false},"excerpt":{"rendered":"

    Por Liliana Parra Santamar\u00eda**La autora es MA en comunicaci\u00f3n estrat\u00e9gica de Johns Hopkins University, directora de la agencia de comunicaciones y dise\u00f1o FLUYT, y consultora en gesti\u00f3n de conocimiento de FIFARMA. En el cap\u00edtulo 63 del libro del Tao Te King (el camino), Lao Tse, nos ofrece una reflexi\u00f3n universal para abordar cualquier tarea colosal. 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