The Ibero-American Alliance of Rare Diseases (ALIBER) celebrated its VI Meeting in the city of Bogota, Colombia, from November 20th to 22nd.
The VI ALIBER Meeting, a space for academia and updates, aimed at raising awareness about the importance of rare diseases in Ibero-America. The meeting was attended by leading specialists within the healthcare industry including representatives of the scientific and governmental fields, patient networks, and pharmaceutical companies.
FIFARMA, one of the organizations present at the event, was represented by Juan Carlos Trujillo, Director of Operations and International Policy of the Federation. The executive participated in the panel called Evaluation of Technologies in Colombia, where he spoke about the participation of patient network organizations in the evaluation of health technologies:
“In patient-centered health policies, the participation of patient organizations in the evaluation of health technologies is of vital importance,” said the expert.
The Ibero-American Alliance for Rare Diseases (ALIBER) is a non-profit organization founded in 2013 by 11 patient organizations, which has consolidated as a coalition that integrates and empowers different associations of people affected by rare diseases in Latin America.
ALIBER represents a total of 42 million people affected by rare diseases through over 500 organizations brought together by its 47 partners in 13 countries.
FIFARMA, committed to improve people’s access to health and patient empowerment, joins the initiatives of the region that promote innovation, universal access to health and the training of patients towards a comprehensive and transparent health system.
Author: Maria Alejandra de Guzman – FIFARMA Communications Manager