New Latin American Patient Academy (LAPA) Aims to Build Advocacy Capacity of Patients and Patient Organizations in the LATAM Region

The Latin American Patient Academy (LAPA) was launched in the context of the World Patient Congress held in Miami from May 24-26.  The Academy, an advocacy capacity building program, is a joint program of the Global Alliance for Patient Access (GAfPA), the International Association of Patient Organizations (IAPO), and Alianza Latina, with academic support from the Department of Adult Virtual Education of The Catholic University of Peru, and financial support from 13 FIFARMA member pharmaceutical companies.

The leaders of the four organizations enthusiastically led the launch of the program in Miami and the execution of its first module, a full day session attended by over 40 patient organizations from Latin America.

 Module 1 curricula focused on the participation of patients and patient organizations in the regulatory process and included a presentation by the head of patient engagement at the European Medicines Agency (EMA). Module 2 will focus on the role of patients and patient organizations in the Health Technology Assessment process, and will be followed by a third module on clinical trials, research, and how patients can learn about trials in their countries*.

Next Steps:

LAPA’s new website, mypatientacademy.org, is scheduled to launch soon and will enable participants to access training materials, advocacy tool kits, and connect with others in the LAPA network.

*Modules 2 and 3 will be organized as satellite meetings during the GAfPA Annual Meeting (to be held in Lima in September) and the Alianza Latina Annual Meeting (to be held in Buenos Aires in November). The Patient Academy also offers opportunities for virtual learning, including webinars and case studies, and participants who complete the program’s requirements will receive a diploma.

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